All material contained on the BTRC (Brain Tumour Research Campaign) website is covered by a disclaimer and protected by copyright laws.

Access to the website is subject to your agreement to the following:

The BTRC website is designed for information purposes only and is not engaged in rendering specific medical advice or professional services.

You may use extracts from the BTRC website for your own personal use provided that you fully acknowledge that this site is the source of the material. Commercial use is not permitted unless the written permission of the Brain Tumour Research Campaign is obtained before any such use.

Brain Tumour Research Campaign makes no warranties or representations about the accuracy of any information on this website or any other website to which it may be linked. The information contained in these pages is for information only and the Brain Tumour Research Campaign shall not be liable for the accuracy, quality or completeness of any information contained in this website.

You are granted access to these pages conditional upon your agreement to indemnify the Brain Tumour Research Campaign and not to hold them liable in any way for the results of any action you may take based on the material contained herein.

English law governs all matters between us in relation to this website and all claims or disputes arising out of or in connection with this website shall be subject to the exclusive jurisdiction of the courts of England and Wales.

Privacy policy

At the Brain Tumour Research Campaign (BTRC) we are committed to protecting your privacy.

This statement is made in the light of the requirements of the General Data Protection Regulation (GDPR) in order to alert users to BTRC’s data processing practices which will govern the processing of your data.

What information do we collect and why?

We will obtain personal information from you when you enquire about our activities, register with us, fundraise for us, make a donation to us, attend one of our events or otherwise provide us with personal information. We may also receive information about you from third parties, for example from one of your family members, friends or colleagues, who wants to tell you about BTRC or its website.

The types of information collected might include names, e-mail address, postal address, telephone number, mobile phone number, credit/debit card details and dietary or access requirements. We may also ask you about your experience of brain tumours, but if we do, we will seek your specific consent, and give you specific additional information about our proposed use of that data at the point where we ask for it.

If you provide us with sensitive personal data, such as your health, we will seek your specific consent to store this information and give you specific additional information about our proposed use of that data. We may collect this information if we help you to write a story about your experiences.

What do we do with the information?

We will use the information you provide to:

  • fulfil your requests – such as provision of information and applications to participate in campaigns
  • process sales transactions, donations, or other payments and verify financial transactions (and claiming Gift Aid if applicable)
  • handle orders, deliver products and communicate with you about orders
  • provide a personalised service to you when you visit our websites – this could include customising the content and/or layout of our pages for individual users
  • record any contact we have with you
  • prevent or detect fraud or abuses of our websites and enable third parties to carry out technical, logistical or other functions on our behalf
  • communicate with our supporters and collaborators
  • if you have agreed to it, provide you with information that we think may be of interest to you.

We may use generic photographs taken at our events for promotional purposes.

Sharing your information

We will only share your information if:

  • We are legally required to do so, e.g. by a law enforcement agency legitimately exercising a power, if compelled by an order of the Court or when claiming Gift Aid on a donation.
  • We believe it is necessary to protect or defend our rights, property or the personal safety of our people or visitors to our premises or websites.

We are working with carefully-selected partners that are carrying out work on our behalf. These partners may include mailing houses, event organisers and venues, marketing agencies, accountants and IT specialists. The kind of work we may ask them to do includes sending emails, event registration and organisation, processing card payments and Gift Aid administration. We only choose partners we can trust. Some of our suppliers may process data outside the EU, but we only share data with such recipients where appropriate standards and safeguards are in place. Whenever we share or transfer your personal information, we comply with the standards set by the GDPR and this privacy statement at a minimum,

Storing your information

We take appropriate measures to ensure that the information disclosed to us is kept secure, accurate and up to date and kept only for so long as is necessary for the purposes for which it is used. We have security measures in place to attempt to protect against the loss, misuse and alteration of personal data under our control. For example, only authorised personnel are allowed to access user information. While we cannot ensure or guarantee that loss, misuse or alteration of data will not occur while it is under our control, we use our best efforts to try to prevent this.

Retaining your information – data retention policy

If you opt in to receiving marketing communications from BTRC under our privacy policy, you will be on our marketing communications mailing list for a maximum of five years (henceforth “your period of marketing contact”) unless you opt out during this time.

Within this five-year period of marketing contact, if you take proactive action to support the charity, the period of contact will be automatically renewed. Pro-active action is defined as making a donation (including a donation in kind) or undertaking an act of fundraising.

You will be notified when your period of marketing contact is coming to an end. You will be given the option to opt in to a further period of marketing contact.

We will continue to retain data for a period no longer than 10 years beyond the expiry of the final period of marketing contact save as may be required by law.

Website cookies policy

We may use cookies to provide accurate monitoring reports to help us understand our users’ interests and preferences, in order to ensure that our website is as user friendly as possible.

Our website may use Google Analytics, a service provided by Google Inc that uses cookies to help the website analyse how users use this site. The cookies will generate information about your use of the website, and this along with your IP address will be stored on servers in the United States by Google Inc. This information is retained for the purposes of evaluating and compiling reports on website activity and for other services relating to internet usage. This information may be transferred to third parties by Google Inc where required to do so by law, or where such third parties process the information on their behalf. Your IP address will not be associated with any other data held by Google Inc.

If you do not agree to the processing of data about you by Google Inc in the manner and for the purposes set out above, you can select ‘disable cookies’ on your browser.

Your rights

By providing us with your personal data, you consent to the collection and use of any information you provide in accordance with the above purposes and this privacy statement. You have the right to ask for a copy of the information we hold about you and to have any inaccuracies in your information corrected.

If you want to exercise these rights or update your personal details, please contact us at Brain Tumour Research Campaign, 1st Floor, 12-15 Hanger Green, London W5 3EL or email or telephone +44(0)20 8601 2402.

You can also contact the Information Commissioner’s Office to find out more about the use of personal data or to report a concern

We reserve the right to amend this privacy statement. If we do so, we will post notice of the change on our website and you will be deemed to have accepted such changes.