BTRC’s advocacy and campaigning activities are carried out by its trustees, patients and their families and friends, as well as members of its scientific team.
Some significant steps forward have been taken in recent weeks which will hopefully bring us closer to our goal of finding a cure for brain tumours.
We regularly attend the quarterly meetings of the All Party Parliamentary Group on Brain Tumours, for which the secretariat is managed by our sister charity Brain Tumour Research, and, at the most recent meeting on 27th February 2018, the first-ever inquiry into the economic and social impacts of this devastating disease was proposed – read more here
Following the previously-reported Government Petitions Committee report into the under-finding of brain tumour research, the Task & Finish Working Group (in which BTRC’s Chairman, Kevin O’Neill, participated) has published a report on its year-long work: read the report here.
After a much-publicised statement in the House of Lords by Baroness Tessa Jowell, which prompted a roundtable debate initiated by the Eliminate Cancer Initiative, the announcement was made of an injection of £45 million into brain tumour research: read the announcement here
If you are interested in getting involved in our campaigning activities, please contact us: email@example.com
We are involved, both independently and in collaboration with Brain Tumour Research, in a wide range of activities raising awareness of the need for increased brain tumour research funding. Examples include:
BTRC regularly attends meetings of the Brain Tumour All Party Parliamentary Group (APPG) which was established on in 2005 by John Bercow, MP for Buckingham, Speaker of the House of Commons and Patron of Brain Tumour Research.
The aims of the Brain Tumour All Party Parliamentary Group are: “To raise awareness of the issues facing the brain tumour community in order to improve research, diagnosis, information, support, treatment and care outcomes”.
The UK Government has formally acknowledged that more needs to be done for brain tumour patients and their families.
Health Minister George Freeman MP announced a package of measures at a Westminster Hall debate on Monday 18th April which was prompted by an e-petition launched by the family of Stephen Realf, lost to a brain tumour at the age of 26, and backed by Brain Tumour Research.