BTRC’s advocacy and campaigning activities are carried out by its trustees, patients and their families and friends, as well as members of its scientific team.
House of Commons Petitions Committee Report, Funding for research into brain tumours 14 March 2016, page 39:
“We heard evidence about the barriers that may be preventing increased investment in brain tumour research. Historical funding problems for research into brain tumours and lack of leadership from successive governments in this area appears to have left a gap in the research workforce within the UK; in particular it is increasingly difficult to recruit PhD students and those who complete their PhD often have to change specialisms or work overseas.”
At a parliamentary debate on brain tumour research funding in April 2016 Health Minister George Freeman MP praised the “extraordinary campaigning” of so many individuals and charities who were: “lifting a torch and joining a magnificent history of people who, through their suffering… drive campaigns and raise awareness, leading to increased funding.”
BTRC are proud to form part of that campaign.
We are involved, both independently and in collaboration with Brain Tumour Research, in a wide range of activities raising awareness of the need for increased brain tumour research funding. Examples include:
BTRC regularly attends meetings of the Brain Tumour All Party Parliamentary Group (APPG) which was established on in 2005 by John Bercow, MP for Buckingham, Speaker of the House of Commons and Patron of Brain Tumour Research.
The aims of the Brain Tumour All Party Parliamentary Group are: “To raise awareness of the issues facing the brain tumour community in order to improve research, diagnosis, information, support, treatment and care outcomes”.
The UK Government has formally acknowledged that more needs to be done for brain tumour patients and their families.
Health Minister George Freeman MP announced a package of measures at a Westminster Hall debate on Monday 18th April which was prompted by an e-petition launched by the family of Stephen Realf, lost to a brain tumour at the age of 26, and backed by Brain Tumour Research.