BTRC Volunteers

“I’ve always thought that the best solution for those who feel helpless is for them to help others.”
Aung San Suu Kyi

BTRC is supported by many volunteers whose lives have been touched by a brain tumour including:

  • Patients
  • Patients’ family, friends and colleagues
  • Family, friends and colleagues of those who have lost their battle with a brain tumour
  • Clinicians and scientists who have seen at first hand the devastating effect of brain tumours

Volunteers help to raise the profile of BTRC and support its fundraising and advocacy. In addition, since our promise is that unlike many charities today :

  • none of the money raised will be spent on administration
  • 100% of net donations will go to research projects,

BTRC’s work would be impossible without the help of our volunteers. They generously give their time and skills, supporting all aspects of our work.

We would like to thank all those who have organised fundraising events or volunteered in other ways in support of BTRC since its creation. There are too many to mention individually, but here are some examples of what groups of volunteers have achieved:

mayors-appeal

‘Magic Wand’ Appeal: The Mayor of the Royal Borough of Kensington and Chelsea, Cllr Christopher Buckmaster,  pledged to use his Mayor’s Charitable Appeal in 2012/13 to raise funds for BTRC and buy a SonoWand, a vital piece of neurosurgery equipment, for Imperial College’s Charing Cross Hospital.

The Appeal raised £175,000 and Charing Cross Hospital became the first centre in the UK to have the latest model of the ground-breaking SonoWand mobile imaging equipment.

According to Kevin O’Neill :

“Accurately locating a tumour and safely removing it without damage to normal brain tissue and blood vessels is a real challenge for surgeons. The SonoWand makes surgery safer, more accurate and more of the tumour is removed so that what’s left responds better to other treatments such as chemotherapy and radiotherapy.

This is great news for brain tumour patients in London and for our team here at Charing Cross Hospital. Early studies using this technology are showing that patient survival and outcomes are better. The new equipment could revolutionise brain surgery, translating into patients living longer and therefore having the opportunity to benefit from our further research.”

Out of this appeal a core group of the Mayor’s organising committee came together to form an ongoing Fundraising Committee committeed to supporting BTRC through raising awareness and organising various events such as concerts, our annual Christmas Celebration and more.

carols-refugetemplecarols-choir2

We are hugely indebted to :

  • Jean Bird
  • Jenny Brown
  • Christopher Buckmaster
  • Anne Hobson
  • Melissa Stisted
  • Maria Sturdy-Morton
  • Hana Tiller

They are currently raising funds to create a clinical research fellowship in memory of Anne Hobson’s daughter, Georgina Beadman.

George Pickard Fellowship

babar

Following the loss of George at age 43 from a brain tumour in 2010, the Pickard family entrusted the £140,000 raised for the George Pickard Clinical Research Fellowship to 2 charities, both of which have pioneered a novel approach to brain tumour research by working closely with clinicians and scientists: BTRC and Brainstrust (www.brainstrust.org.uk).

The Fellowship created a new post at Imperial College (based at Charing Cross Hospital) for a neurosurgical trainee with an interest in neuro-oncological research, leading to a higher degree (MD).

The fellow provides a crucial link between the clinical service at Charing Cross – which has a rapidly expanding neuro-oncology centre of excellence, handling over 250 brain tumour cases each year – and the John Fulcher Molecular Neuro-oncology Laboratory, where the research team (funded by BTRC) has developed several new lines of research.

Corrado Grassini PhD Fellowship

Grassini Fellowship

Following the loss of Corrado at age 42 from a brain tumour in 2009, the Corrado Grassini PhD Fellowship was created with £75,000 raised by his family, friends and colleagues in his memory. This PhD studentship was created to study metabolic differences in certain types of brain tumour, using metabolomics as a translational research tool, linking the laboratory and clinic.

Dr Julia Langer was appointed to carry out this research in 2012 and she has recently successfully completed her research and been awarded her PhD.

It is hoped that additional funds raised in Corrado’s memory will contribute to the funding of a project predicting synergistic drugs for recurrent glioblastoma multiforme.